The AGSAA is launching a drive to collect leftover Newborn Screening (NBS) cards to advance an AGS newborn screening test! When infants are born, doctors collect and dry a few drops of blood on a paper card, to be screened for treatable disorders. It takes years for a disorder’s test to make it to primetime, as it goes through extensive lab development and validation, a pilot program, and extensive review before inclusion in official recommendations. The AGSAA along with our partners at CHOP aim to collect enough samples by the end of the year to validate a test in development. Help us collect 50 new cards by year’s end!
Here’s how you can help:
If you’re in the USA, lookup your state’s NBS card retention policy at Baby's First Test to see if your child’s NBS card is available in storage.
Contact the AGSAA at info@agsaa.org whether your child’s NBS card is still available or you’re unsure. Include your child’s name, date of birth, and birthplace; and our team do all the work and prepare the forms for you.
Lastly, sign the forms and consent to CHOP collecting the card!