Aicardi-Goutieres Syndrome (AGS) is an autoimmune disorder that mainly affects the brain, the immune system and the skin in infants and babies. As a result, lifespan is greatly reduced.

 

Donate now!

 

 Help us by setting up monthly donations or a one-time donation today! Your donation goes directly to research funds and helping families.

 

About Aicardi-Goutieres Syndrome 

AGS primarily affects the developing brain and immune system of infants and toddlers, most often resulting in profound developmental delays, lifelong physical impairments, and persistent neurological changes. In AGS, the body’s immune system turns on itself in a destructive way, targeting myelin, or white matter in the brain, and significantly impacting the nervous system. Continue reading about this complex disorder.

 

 

Resources For Families

Find helpful information, guides, and support. 

News and Updates

Stay up-to-date with AGS and the AGSAA.